Personal health records (PHRs) help a patient, their relatives, and
their clinicians, better manage the patient's illnesses. Paper PHRs are
common in some countries, like Italy, where the patient is responsible
for keeping and carrying the medical records from one clinician to
another. But England's mass digital medical infrastructure offers many
interesting and powerful possibilities with electronic PHRs.
This conference will discuss how to make use of these possibilities in the NHS today. Dr. Al-Ubaydli will talk about the research evidence and best practices of PHRs. Dr. Hannan will describe how PHRs fit into his daily practice as an NHS GP. Ms. Hillier will explain patients needs for PHRs. Dr. Al-Ubaydli will chair panel discussion in which all three speakers will answer questions from attendees.
The aim is for attendees to leave with concrete steps on why and how they should implement PHRs in clinical practice.
Dr. Mohammad Al-Ubaydli (www.mo.md) is a PHR researcher at UCL’s Centre for Health Informatics and Multiprofessional Education (www.chime.ucl.ac.uk). He trained as a doctor at the University of Cambridge and a programmer at Anglia Ruskin University. He spent six years as a researcher in the USA and wrote six books about the use of IT in health care. His most recent, Streamlining Hospital-Patient Communication: Developing High Impact Patient Portals, discussed the use of PHRs by hospitals in the USA. He is the founder and CEO of Patients Know Best (www.patientsknowbest.com), a Cambridge-based PHR company.
Dr Amir Hannan is a full time General Practitioner at Haughton Thornley Medical Centres in Hyde and a founding member of the Records Access Collaborative having enabled all his patients to be able to have full access to GP held records via the internet if they wish for over three years. Over 600 patients of his are now accessing their GP records this way. He has helped to develop a practice website, www.htmc.co.uk, which supports patients, clinicians and managers in a world where information and services can be made available for patients and their families.
He is the Information Management &Technology lead for NHS Tameside and Glossop (formerly known as Tameside & Glossop PCT), having recently stepped down as Clinical Governance lead and as a Professional Executive Committee (PEC) member. He is also a member of the local Care Record Development Board supporting patients, clinicians and managers to understand how personal health information can be shared across a health and social care setting and to promote best practice by combining local expertise with national and international experience and knowledge. He has recently become the Primary Care IT lead for NHS North-West (formerly known as North-West Strategic Health Authority) and is a member of the Map of Medicine strategy group, NHS North-West.
He is also the Greater Manchester NHS Clinical Assessment and Treatment Service clinical lead on behalf of Greater Manchester PCTs. Dr Hannan has written and lectured extensively on health informatics matters and his experience to date. He is also a member of the HealthSpace Reference Panel (www.healthspace.nhs.uk) as well as the National Clinical Reference Panel for the Summary Care Record within NHS Connecting for Health (www.connectingforhealth.nhs.uk). He is a member of the Clinical Leaders Network (www.cln.nhs.uk); a member of the Primary Healthcare Specialist Group (www.phcsg.org), a branch of the British Computer Society; and a member of the editorial board of the "Journal of Communication in Healthcare". He feels most patients should become eMPOWERed in order to support Real-Time Digital Medicine!
Melissa Hillier advises the NHS on PHRs as the Senior Communications Manager at the Genetic Interest Group (www.gig.org.uk). This is the UK alliance of charities and support groups for all people affected by genetic disorders. GIG's mission is to promote the development of the scientific understanding of genetics and the part that genetic factors play in health and disease, and to see the speedy transfer of this new knowledge into improved services and support for the treatment of currently intractable conditions. Ms. Hillier's work includes helping to raise awareness of genetic conditions amongst health professionals, the media and the public in general, as well as keeping members abreast of developments taking place that will have an impact on them. She also works on various projects in a variety of capacities ranging from membership of Steering Committees to input into key debates through conferences and workshops as well as the management of a variety of GIG's Projects, including the Facilitating Networks Project, Insurance Templates Project and Patient Engagement in Scotland Project.