Research evidence and best practices
Table of contents
- 1. Video
- 2. Slides
- 3. References
Lecture by Dr. Mohammad Al-Ubaydli, Patients Know Best team, part of the Using Personal Health Records in the NHS event on 2009/02/17.
Dr. Mohammad Al-Ubaydli (www.mo.md) is a PHR researcher at UCL’s Centre for Health Informatics and Multiprofessional Education (www.chime.ucl.ac.uk). He trained as a doctor at the University of Cambridge and a programmer at Anglia Ruskin University. He spent six years as a researcher in the USA and wrote six books about the use of IT in health care. His most recent, Streamlining Hospital-Patient Communication: Developing High Impact Patient Portals, discussed the use of PHRs by hospitals in the USA. He is the founder and CEO of Patients Know Best (www.patientsknowbest.com), a Cambridge-based PHR company.
Video
Using Personal Health Records in the NHS: Research evidence and best practices from Mohammad Al-Ubaydli on Vimeo.
References
- Barry 1999: Involving patients in medical decisions: how can physicians do better? Clinicians need better tools to provide patients with informed decision making.
- Brennan 1999: Health informatics and community health: support for patients as collaborators in care. Describes some of the tools that help patients with informed decision making.
- Connecting for Health 2004: Connecting Americans to their Healthcare. Final Report of the Working Group on Policies for Electronic Information Sharing Between Doctors and Patients. Lists the Markle Foundations characteristics of an ideal PHR.
- de Clercq 2001: Design of a consumer health record for supporting the patient-centered management of chronic diseases. Patients with chronic diseases are prime candidates for PHR tools and they like private messaging with their clinicians.
- Giglio 1987: Acceptance and use of patient-carried health records. Patient-held managment plans improve compliance and care.
- Leydon 2000: Cancer patients’ information needs and information seeking behaviour: in depth interview study. Patients differ in how much and when they want to learn about their cancer.
- Kaplan 2001: Consumer informatics supporting patients as co-producers of quality. Co-authorship between clinician and patient creates accuracy and concordance.
- Mellins 2000: Developing and communicating a long-term treatment plan for asthma. Patient-held managment plans improve compliance and care.
- Pyper 2004: Patients’ experiences when accessing their on-line electronic patient records in primary care. Patients liked accessing their records but wanted to add to them.
- Ralston 2007: Patient web services integrated with a shared medical record: patient use and satisfaction. Most used aspects of a patient portal were: medical test results (54 of 1,000), medication refills (44 of 1,000), after-visit-summaries (32 of 1,000), and patient-provider clinical messaging (31 of 1,000).
- Ross 2003: The effects of promoting patient access to medical records: a review. Overall, modest benefits, e.g. in enhancing doctor-patient communication. Minimal risks, e.g. increasing patient worry or confusion. But studies limited in quality and low in statistical power.
- Winkelman 2004: Overcoming structural constraints to patient utilization of electronic medical records: a critical review and proposal for an evaluation framework. Interaction is better than access, but several factors are important for making us of it.
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